“We knew our baby girl wasn’t well – but hearing the words cystic fibrosis (CF) was a whole new level of devastation”

The birth of a new baby is usually such a happy and exciting time. For parents expecting twins it can be even more exciting.

Nyssa and Cody’s twins arrived very early, at 33 weeks, amidst great anxiety. Their precious babies were immediately placed in humidicribs for five long weeks.

Finally the twins were well enough to come home, but the good news didn't last long. Baby Cole was putting on weight and feeding well. Sadly, it was a different story for little Norah. She was losing weight and showing other tell-tale signs of CF.

Life was about to change forever.


“We had one stressful week at home, and then our world fell apart. It was a terrible shock,” says Nyssa “CF is something we knew absolutely nothing about. Now it's our everyday and it will be for the rest of our lives.”

I’m sure you can imagine how heart-breaking that initial news was. That’s why we’re calling on our generous community to support all CF families this Christmas.

Please will you give a gift today?

Norah’s medication, food and physio is a major part of the family’s everyday routine. “Clearing her airways is a constant job. As well as physiotherapy at home, she has to take 14 doses of medication every day.

Cystic Fibrosis Community Care in NSW provides valuable and practical support for families and carers of a CF child. With a caring community around them, we can reduce the impact on a family. 

Specialist counselling, education, financial and in-hospital support are just some of the examples of how we care. The journey is not quite as tough when you’ve got a community by your side.

There is so much more to do...

Your gift today will reach families who seriously need a helping hand. Despite major medical advances, CF still takes young lives. Norah’s life will be very different to her twin – but with our support as a community we can make a difference.

All our work and all our services are only possible when generous people like you contribute – especially in this giving season of Christmas.

Your support will help to reduce the huge financial and emotional impact CF has on families living in New South Wales.

Please give a gift that counts this Christmas and help make a difference.


Cystic Fibrosis NSW

Cystic Fibrosis Community Care (CFCC) NSW is committed to the provision of timely, effective, person-centred and evidenced based information and services. We work with people living with cystic fibrosis, their families and carers, and raise awareness about CF with the community. CFCC NSW provide a range of support services, education and research that will help people with CF now and into the future.


Every 4 days

A baby is born with CF every 4 days. Most won’t turn 40!


1 in 25

1 in 25 people carry the gene. most don't know it!


No Cure

Currently there is no cure for cystic fibrosis. 

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